Parent warriors: a non-profit initiative for children and adults with disabilities

children disabilities

It is the first Integral Rehabilitation Center of Tandil, and its construction was promoted by 15 families, thanks to donations and festivals organized by the same members and neighbors of the community

When we talk about disability, often the feeling of vulnerability is so present in the daily lives of those who suffer from it, as well as in the family nucleus. With this idea, a group of parents worried about the lack of information and advice began an arduous path in search of the help of others who were in the same situation of uncertainty. Thus was born the project known today as CIANE -an association formed by parents of exceptional children-, and whose inauguration promises to be a great event in Tandil and its surroundings.

It is the first Integral Rehabilitation Center for children with different disabilities that will work in the area. All thanks to the teamwork of at least 15 parents who, with the same dream, worked hard to collect the money necessary to achieve the goal since 2006.

It was in 2007 when this initiative began to take on the necessary color, thanks to the donation of a two-hectare plot where today the much-awaited physical space for the assistance of children and adults with disabilities is being built. Although there is still no opening date, it is estimated that its doors will open this year.

“In 2006, the need arose for a place where there are professionals who can comprehensively address the task of rehabilitation of our children, beyond the advice given to us as a family in legal matters, disability certificates or advice with social works. that integrates all the questions that you have to address when you have a child with a disability, “explained Arabela Lanz, member of the NGO, to Diario de Tandil.

“First we settled as a civil association, and we started to analyze what we could have, donated a plot of two hectares, we wrote it, and from that, with the help of professionals, we started to build the physical plant of what is going to to be the Integral Rehabilitation Center for Children with Disabilities, “he said.

With the help of professionals, more donations and the collaboration of the entire community of Tandil, today CIANE is in its last stages.

It is the union of an entire community to promote education and advice for those who need it most. A group of parents – far from being seated – decided to accompany hundreds of families who are living through the same problem that they have already experienced.

“The need was the reason that united us, only those who go through these situations know what counts and what does not.” Feeling alone, not fully advised, with all the needs our children have, offers a plus. other parents go through the same thing and we work for that, we want our children to have the rehabilitation they deserve and that will improve their quality of life, that is our job as parents.

Bosco is one of the guys who inspired this project. His parents Arabela and Diego, members of this initiative, told Infobae about their history and the complications they had to face after learning about their son’s disability, Kabuki syndrome, known as a genetic disorder characterized by unusual facial features. , skeletal abnormalities and mild to moderate mental retardation.

“When Bosco was born, nothing was as we expected, our house became a kind of hospital in a short time, but luckily a geneticist managed to name my son’s syndrome, which allowed us to understand and anticipate several characteristic symptoms of The pathology Nothing is as it should, social works permanently deny access to health, ignoring all laws and treaties that recognize rights, being essential to avail of Amparo resources to access them, “said Arabela.

This family is one of 15 that knew how to go through the same path and today they decide to help others with their resources. The importance of the exchange of experiences can not only facilitate a diagnosis in time and form but also anticipate bureaucratic procedures and obstacles inherent in the system to which the parents of children with disabilities, unfortunately, face daily.